Resources
This list of links can direct you to a number of useful organizations and services including those mentioned in the book, as well as new resources that may be helpful for you.
Please note that these links are provided for informational purposes only. Neither the Patient Empowerment Network or the authors are responsible for the content on these websites.
Health Information
Consumer-Oriented
- Association of Cancer Online Resources (ACOR)
- EmpowHER
- Everyday Health
- Mayo Clinic
- MedHelp
- Patient Power
- WebMD
Medical Professional-Oriented
Advocacy Groups
- American Cancer Society
- American Epilepsy Society
- American Heart Association
- American Partnership for Eosinophilic Disorders (APFED)
- Anxiety Disorders Association of America
- Brain Tumor Foundation
- California Coalition for PKU & Allied Disorders
- Canadian PKU and Allied Disorders
- Celiac Disease Foundation
- The Colon Cancer Alliance
- Consumers Advancing Patient Safety
- Epilepsy Foundation
- Get Your Guts in Gear
- I’m Too Young for This Cancer Foundation
- Inflammatory Breast Cancer Foundation
- International Myeloma Foundation
- Leukemia and Lymphoma Society
- Lymphoma Foundation of America
- Melanoma Research Foundation
- The National Association for Proton Therapy
- National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM)
- National CML Society
- National Comprehensive Cancer Network (NCCN)
- National Fibromyalgia Association
- National PKU Alliance
- Patients Against Lymphoma
- PKU Organization of Illinois & Allied Disorders
- Propionic Acidemia Foundation
- Sarcoma Alliance
Online Patient Communities
Electronic Health Records
Health Care Ratings + Rankings
Online Communication Tools
Patient-Oriented
Micro-Blogging Tools
Blogging Tools
Video Sharing Sites
Health Management Tools
Governmental Health Agencies (U.S.)
- Centers for Disease Control and Prevention
- National Institutes of Health
- US Department of Health and Human Services
Other Organizations
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Insider's Tip:
Learn three critical tips from the book. Watch the replay of Andrew's appearance on KOMO News in Seattle.
Watch NowRemember that statistics reflect large generalities. They are only helpful when they apply to your specific situation. You are a patient, not a statistic.
Think back to when you were a full-time student and try to recall what researching techniques worked best for you then. You can modify those same approaches and apply them to your current quest.
Seeking a specialist doesn’t mean you’re abandoning your local doctor. It means you’re adding to your health care team, which can also enhance your local doctor’s knowledge.
Using the Web as a communication medium allows you to distribute your news to a broad audience while establishing a slight privacy buffer zone around you.